I have just begun reading the Keeping it Trill blog, which looks fascinating!
I'd like to respond to the comment Kit left here.
I'll take the comment in the helpful spirit it was given. But I want to give some more context and also raise another issue.
First of all, the Spiderman website doesn't show 30-minute Spiderman cartoons. What Sunny was clicking on was an Iron Man webgame. I didn't want to spend too much time on the site because the possibility he'd click ahead to something too violent was escalating. Second, he doesn't have enough attention span to watch a 30-minute show. He can watch up to 20 minutes of a show only if I'm sitting next to him also engaging him in an activity such as coloring or stickering.
I don't think that having video games limited is going to mean he ends up with a label of ODD! That's a rather dire warning.
We've visited his foster home over two different weekends and talked to his foster mom quite a bit. We know her house rules, and our rules, to a large degree, are extensions of her rules. For video games, they're about the same. Sunny was not allowed to play them during the weekday and his times during the weekend were strictly regulated.
When it comes to television, our rules are a little bit stricter. I don't like the fact that he was watching so many commercials... one of the first nights he was here he started singing the freecreditreport-dot-com song! It was incredibly cute, but still. So he can only watch PBS Kids shows with no commercials, or certain recorded Nick Kids or Disney shows where I fast-forward the commercials.
When it comes to morning times, we're not as strict. Her house was run like an army, because she had an army of kids. Sunny was always the first awake (he's definitely a morning person) and was told many times he had to stay in his room until the others were up, which often frustrated him. At our house, he gets up when he hears us get up. We give him showers at night so in the morning his routine is pretty simple, and has plenty of time for watching PBS Kids or watching or helping me cook, or coloring.
As an only child, he's now getting a lot more attention than he's getting in his foster home. That's what he needs, more than anything else.
I just would need a whooooole lot more convincing by someone who knew Sunny before I let him engage in all kinds of pleasure-seeking activities without giving him limits. What would the pay-off really be? Most likely I'd see a lot of restlessness, irritability, further inability to self-amuse. I've seen him in "toy rooms" when he gets overstimulated, and he doesn't look happy or pleased at all. He'll flit from one thing to the next, faster and faster, working himself up, getting angry that this or that toy won't work right, the toy is stupid, he's bad at this, he's stupid because he can't get the stupid toy to work, and so on...
He looks so much happier when he's in some kind of social activity, or when he's using his whole body to do something, like his gym class or skateboarding or just plain couch-wrestling.
And that raises a broader issue. Everything I hear from training and therapists is structure, structure, structure. When kids are thrown into a new environment that's one thing they look to for support. And then that has to be balanced against their need for control over the environment. Sometimes the two things seem diametrically opposed but ideally they shoudl work together.
Right now it's hard to give more control because we don't fully know what Sunny can or can't do, but I think it's happening slowly. He loves helping, and chores, as long as they're short. He couldn't help me water my plants outside, for example... he got bored pretty quickly. But anything involving putting things away or taking them out again, and he's on it! When he says "let me do that!" or "let me help!" my first reaction is to say "No" but I keep reminding myself to say "yes" whenever possible.
He also gets control/limited choices over what activities to do, what books to read, what shows to watch.
Also, about having his old life vanish... I understand that it's impossible for him not to feel that way. But as much as we can, it's been minimized. My caseworker, on her first weekly visit, gave him a friendly reminder that people don't just vanish. He talks to his foster mom every other day on the phone, and we have a weekly webcam chat with her and some of his other foster family members. He knows what's going on in their house very weekend and lets them know how his week has been going.
Structure versus control is definitely something to talk about with a therapist, which is going to happen as soon as we get our Medicaid card and schedule appointments. It's also hard to know exactly how to go ahead because of his medication. I am leaning more and more to tapering him off the medication by the end of the year, but we'll need to wait several months and see how things settle down.